After three quite agonizing hours removing a virus that had attached to my computer, I am finally able to begin writing. Being that I have not yet bought an Apple computer, I am in constant fear of contracting viruses because of all the new applications and downloads we get, just as an FYI I have three different antivirus program installed in my computer, apparently it is not enough.
Anyways, back to my topic, looking through my Pageflakes I found a new post regarding the interesting experiences an occupational therapy intern was going through in her adult day care facility internship program on: http://otstudents.blogspot.com/2008/03/my-second-and-final-week-of-level-i.html. More interestingly I found a link to an autistic blogger on one of her old postings. The link was http://www.wired.com/medtech/health/magazine/16-03/ff_autism with an article written about, 27 year old Amanda Baggs. This is an absolutely miraculous article with an amazing U-tube video attached. Having worked with the autistic population for such a long period of time, one sees the beginning of this video as a typical low functioning autistic person, and falls in absolute amazement by the end of the video. This young woman appears to be severely autistic by her predominant stemming, repetitive behaviors of flapping her hands, rocking back and forth, avoiding all eye contact, non-verbal “human language”, yet she is humming a repeated sound throughout the video. As the video progresses Amanda starts typing the story behind this video and a robotic voice reads her typing. Not only do you find out that she is the one who has put this video together on her own without anyone’s help, but you also come to find out the perspective of what some come to believe as a severely autistic non-functional person.
Amanda talks about the frustration of her form of interpreting things through the senses like touch, taste, feel, and hear, yet for the simple reason that she does not speak the language of other humans, people look at her as less of a human being. Not only is her language ability equivalent or superior to that of an average 27-year old, but she reasons and describes what she feels and how she interprets the outside world. Her descriptions are vividly similar to what autism specialists describe as the true feelings and understanding of an autistic individual.
I found this article fascinating, and to a certain point, a bit scary. I say this because in my line of work we come across many children that look and act just like Amanda, and similarly to her they have very little or no verbal language. They rock, stem, and act as if they were obsolete to the outside world. We as care givers look at them as severely autistic and find it difficult to get any type of response from them demonstrating a slight improvement in abilities and as Amanda states much of it goes back to the ability to speak our “human language”. This video interpretation makes me go back to the hundreds of children I have worked with and makes me think whether or not these children were able understand and comprehend so much more than I could have ever imagined.
Amanda is even more bewildering in the fact that she is living in a group home because she in unable to care for herself, she cannot bath, prepare her own food, nor take care of daily living activities, yet her ability to use the computer to interpret her feelings is miraculous. She mentions that some people may think that someone else has set up this computer video for her because of her visibly apparent abilities, but she claims that her care takers would not even know how to apply the computer programs to her computer. I am still in amazement to think that someone with such a lack of general living abilities would be able to communicate so vividly her true feelings of living life with autism and the interpretation of her particular form of communication. I would also hope that someone, like Amanda, with such capabilities could help research centers in autism, discover how to bring these abilities out in other severely autistic children and adults. As a care giver for many autistic children I would admire the ability to better communicate with my clients in order to better serve their needs. I would want to allow them to continue being their autistic selves, yet improve their communication to the world in a way we could better understand their frustrations, pleasures, anger, and happiness.